advocacy

Better quality of life for patients is achievable! Support in daily life, complementing treatment can lead to better quality of life.

One driver of tresatment outcome is sub-optimal health behavior by patients. There are many types of sub-optimal behavior, ranging from unhealthy eating, not enough exercise and therapy adherence. It causes sub-optimal treatment outcome as well as a lower quality of life. And costs billions of euros a year in increased health care costs. For instance, sub-optimal therapy adherence in chronic leukemia patients costs €5,000 per patient per year.

Behavioral, lifestyle support with eHealth is one way to reduce these costs,

But healthy behavior, including therapy adherence, is hard for many patients. Not only is it hard for them, designing programs to empower health behavior is also hard. More than 200 variables have been shown to potentiaal impact therapy adherence, for instance.

The key to successful healthy behavior support programs? True patient centered design. Only a fully personalized program can effecteivly support patients in dealing with the issues they face every day.

Utilizing our People First Design method Futurience SHINE developed a program supporting chronic leukemia patients in their daily struggle for quality of living. The program improved quality of life overall, and caused 80% of patients with sub-optimal therapy adherence to optimal therapy adherence. For more info: Robinapp

No SHINE program is conceived without the direct involvement of patient advocacy, formal – such as patient advocacy organizations – or informal.
Some call it user-centred-design. Others call it human design.
We call it People First Design.

Any SHINE support program needs to work, to actually improve lives. Not only for in a group of people, a population, but it needs to work for each individual. It needs to work for each of them. That’s our aim.

But there is more. Any person, any patient, is vulnerable. Programs, apps, can exploit these vulnerabilities. There are ample examples, especially in the social media domain.

Users, sponsors, partners of the SHINE programs need to be able to trust us. Trust us to do the right thing: act in the best interest of the people using the programs. That’s our promise.

It’s the difference between behavior change or empowerment. Between manipulation or support. Between focusing on social impact or on money.

Acting in the best interest of someone else may beome patronizing: who’s to say what’s best for anyone? Well, there is only one who can decide that! The patient, the user is in charge, in control and decides.

We believe that when the intentions of the program maker are aligned with the interests user of the program, there is no conflict of interest.

That’s how we make our programs. And it is how we would like to partner with patient advocats.

Does that mean it’s all “your wish is my command?!” Well, yes, unless we can’t afford it financially. Which brings us to the money.
We believe that by doing the right thing for people, causing a real social impact of better lives, our business can thrive.

After all, we made it our mission to support people, patients, improve the quality of their life. Our commitment is to them.